PATIENT CARE RECORD
There are several patient data extraction schemes in place currently. The information below and an opt-out form for all these schemes are available by clicking here. You can also view a brief overview of the schemes. Please think carefully before opting out of any of these schemes and ensure you sign the form before returning it to Four Oaks Medical Centre. Please note that we are unable to confirm receipt of forms sent to us by email.
The Summary Care Record (SCR) (Identifiable data)
This is a national database that is intended to provide basic health information to all providers who need it.It is intended that your demographics (personal details such as name, dob, address etc.) as well as basic medical information about you, (initially just drugs taken, documented allergies and any “End of life” decisions) would be stored and made accessible to anyone needing it within the NHS (for example if you were seen in a Casualty department in another area of the country. You can ask to “opt out” of the SCR if you wish by asking the practice to amend your records. See below for how to do this. ‘However, you need to think carefully before opting out here — the SCR allows doctors throughout the country to access your basic information if they need, which will help them look after you, particularly if you are brought in unconscious. Many GP practices would recommend to their patients that they should not block SCR data extraction to take place. Please note that you will be asked again to give your consent to share this information at the point of treatment unless in an emergency where you are unable to do so.
Summary Care Records Information: 0845 603 8510 / www.nhscarerecords.nhs.uk
Local Care Records (Identifiable data)
Many areas of the country and Clinical Commissioning groups (CCG’s) are now starting to establish their own local databases of patient information, to try to improve communication between different services (such as Health Service & Social Services) & to help plan local care. They bring together information held on computers in Health care and in Social care. They are designed to give staff working in these areas faster access to relevant patient information. Anyone accessing a patient’s records will have their details recorded so it’s possible to see who has opened each record. In Birmingham, this local care record is called the “Central Care Record, or CCR” and covers organisations in Birmingham, Solihull and Sandwell.
Key benefits of these schemes are hoped to be things such as:
• Safeguarding Children: poor information sharing has been highlighted as a
significant risk in recent cases.
• Frail Elderly: sharing information when someone is vulnerable.
• Urgent care: if someone is not able to give vital information in a critical situation.
Central Care Records Information: 0121 612 3840 / http://www.midlandscentralcarerecord.nhs.uk/
CCR Information leaflet
Care.data (identifiable data) - Rolling out nationally from Autumn 2014
In 2013 the government proposed to extract large sections of data from GP practices to form a national database from which they intend to analyse health needs across the country & also locally. GP’s will not have a choice about this extraction and it will be universal, to help support NHS planning. It is important to understand that this project will extract most coded data from your record. Only “coded” data, like symptoms, diagnoses, drugs, lab results etc. is extracted. Certain “sensitive” parts of your record will automatically be excluded from extraction, if present. This includes anything related to infertility treatment, history of sexually transmitted diseases, abortions, gender identity issues & any domestic violence or abuse. The coded data will be sent, initially, to a large organisation called the HSCIC (Health & Social Care Information Centre) where it will be held securely. This data will then, it is claimed, be anonymised so that it would not be possible to work out whose data was whose. It could then be passed on later to other agencies, including commercial organisations.
The official guide to the care.data project is available here: http://www.england.nhs.uk/ourwork/tsd/care-data/
Although we at Four Oaks Medical Centre cannot block the upload of our patient data to the HSCIC, you can block your own data being uploaded, if you wish.
Care.data Information: 0300 456 3531 / www.nhs.uk/caredata
More information is available from the helpline numbers and websites above or by downloading the following:
Full version of the above information with opt-out form
Overview of schemes